Principal Investigator: Hans D. Ochs, MD
Children's Hospital & Regional Medical Center
Seattle, WA

Co-Principal Investigator: Charlotte Cunningham-Rundles, MD, PhD.
Mount Sinai Medical Center
New York, NY

Steering Committee: Rebecca H. Buckley, MD
Duke University Medical Center
Durham, NC

Thomas Fleisher, MD
National Institutes of Health
Bethesda, MD

Ramsay Fuleihan, MD
Children's Memorial Hospital
Chicago, IL

Raif S. Geha, MD
Harvard Medical School
Children's Hospital
Boston, MA

Steven M. Holland, MD
National Institute of Allergy and
Infectious Disease, NIH
Bethesda, MD

Luigi Notarangelo, MD
Harvard Medical School
Children's Hospital
Boston, MA

Jennifer M. Puck, MD
University of California, San Francisco
San Francisco, CA

E. Richard Stiehm, MD
Mattel Children's Hospital
University of California at Los Angeles
Los Angeles, CA

Kathleen Sullivan, MD, PhD
Children's Hospital of Philadelphia
Philadelphia, PA

Administration: Jacqueline Sievers
Project Manager

Shannon Blotner
Registry Manager

Robert Fairson
Database Specialist

United States Immunodeficiency Network

The United States Immunodeficiency Network (USIDNET), a research consortium, was established to advance scientific research in the primary immune deficiency diseases (PIDD) and specifically to:

• Assemble and maintain a registry of patients with primary immunodeficiency diseases to provide a minimum estimate of the prevalence of each disorder in the United States. Provide a comprehensive clinical picture of each disorder and act as a resource for clinical and laboratory research.
• Establish a multifaceted mentoring program to introduce new investigators into the field and stimulate interest and research in primary immune deficiency diseases.
• Establish an advisory/review committee to maintain a cell/DNA Repository of biologic material from well-characterized PIDD patients for the advancement of scientific research