Principal Investigator: Charlotte Cunningham-Rundles, MD, PhD.
Mount Sinai Medical Center
New York, NY

Co-Principal Investigator: Luigi Notarangelo, MD
Harvard Medical School
Children's Hospital
Boston, MA

Co-Principal Investigator: Jennifer M. Puck, MD
University of California, San Francisco
San Francisco, CA

Co-Principal Investigator: Kathleen Sullivan, MD, PhD
Children's Hospital of Philadelphia
Philadelphia, PA

Administration

Jacqueline Sievers
Project Manager
Towson, MD

Shannon Blotner
Registry Manager
Towson, MD

US Immunodeficiency Network

The United States Immunodeficiency Network (USIDNET), a research consortium, was established to advance scientific research in the primary immune deficiency diseases (PIDD) and specifically to:

• Assemble and maintain a registry of patients with primary immunodeficiency diseases to provide a minimum estimate of the prevalence of each disorder in the United States. Provide a comprehensive clinical picture of each disorder and act as a resource for clinical and laboratory research.
• Establish a multifaceted mentoring program to introduce new investigators into the field and stimulate interest and research in primary immune deficiency diseases.
• Establish an advisory/review committee to maintain a cell/DNA Repository of biologic material from well-characterized PIDD patients for the advancement of scientific research

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