Principal Investigator: Hans D. Ochs, MD
Children's Hospital & Regional Medical Center
Seattle, WA

Co-Principal Investigator: Charlotte Cunningham-Rundles, MD, PhD.
Mount Sinai Medical Center
New York, NY

Steering Committee: Rebecca H. Buckley, MD
Duke University Medical Center
Durham, NC

Thomas Fleisher, MD
National Institutes of Health
Bethesda, MD

Ramsay Fuleihan, MD
Children's Memorial Hospital
Chicago, IL

Raif S. Geha, MD
Harvard Medical School
Children's Hospital
Boston, MA

Steven M. Holland, MD
National Institute of Allergy and
Infectious Disease, NIH
Bethesda, MD

Luigi Notarangelo, MD
Harvard Medical School
Children's Hospital
Boston, MA

Jennifer M. Puck, MD
University of California, San Francisco
San Francisco, CA

E. Richard Stiehm, MD
Mattel Children's Hospital
University of California at Los Angeles
Los Angeles, CA

Kathleen Sullivan, MD, PhD
Children's Hospital of Philadelphia
Philadelphia, PA

Administration: Ann Vukelich
Project Manager

Sarah Bush
Registry Manager