Proposal Central Log In Home Committees Education Mentoring CommitteeSteering CommitteeAdvisory CommitteeSenior Advisory Committee Contact UsNews IUIS TRAVEL SCHOLARSHIP AWARDS Resource LinksResearch Grants Research Subcontracts Research Awards Repository Repository Info Advisory Panel Education Mentoring Programs Summer School »Travel Scholarships »Visiting Immunology Scholar »Fellow/Scientist Training Program Mentoring 2005 Summer School Travel Grantees Commentary AWARDS - Short Term Training Disease Registry Registries Info Registries - Demo Registries Live Registries – Forms » IRB Resource Documents » Scientific Advisory Committee » REGISTRY GUIDE – Coming Soon INTRODUCTION – Coming Soon USER AGREEMENT – Coming Soon REQUEST FOR LOGIN AND PASSWORD – Coming Soon PATIENT FORMS » REGISTRY - CORE REPORT (USE FOR ALL ENTRIES) REGISTRY – DISEASE SPECIFIC (USE ONE FOR MOST ENTRIES) » AGAMMAGLOBULINEMIA, X-LINKED AND AR CHRONIC GRANULOMATUS DISEASE COMPLEMENT DEFICIENCIES CVID AND OTHER HYPOGAMMAGLOBULINEMIAS DIGEORGE SYNDROME HYPER IGM SYNDROMES LEUKOCYTE ADHESION DEFICIENCY NEMO and NF-kB RELATED DISORDERS SEVERE COMBINED IMMUNE DEFICIENCY/CID WISKOTT-ALDRICH SYNDROME USIDNET -Western IRB » Mt.Sinai School of Medicine » CHOP » NIH/Intramural NIAID » Disease Specific Working Groups WIRB Submission » WIRB Approved Clinical Protocol WIRB Approved Informed Consent (English) WIRB Approved Informed Consent (Spanish) WIRB Waiver of Authorization 2006 WIRB Certificate of Approval 2006 WIRB Renewal Certificate 2007 Clinical Protocol Summary IRB - Sample document Research Application Research Participant Information Sheet Modification of Informed Consent Clinical Data Review Form Request for Waiver Authorization Request Access Health Info for use of de-identified data Progress report IRB - Annual Adverse Event Report IRB - Annual Enrollment HIPPA - Child Authorization HIPPA - Decedent Authorization HIPPA - Authorization IRB Assurances Clinical Protocol Consent to Participant Letter to IRB NIH - IRB Letter of Approval NIH - Adult Consent to Participate NIH - Child Consent to Participate Clinical Protocol Data Entry Forms Registry Consent Form Registry Informed Form Letter to WIRB and Response 2-part Informed Consent Return to Committees Steering Committee Hans Ochs, MD Children's Hospital and Regional Medical Center Seattle, WA Email - allgau@u.washington.edu Charlotte Cunningham-Rundles, MD, Ph.D. Mount Sinai Medical Center New York, NY Email - charlotte.cunningham-rundles@mssm.edu Rebecca H. Buckley, MD Duke University Medical Center Durham, NC Email - buckl003@mc.duke.edu Raif S. Geha, MD Harvard Medical School Children's Hospital Boston, MA Email - raif.geha@childrens.harvard.edu Steve Holland, MD National Institutes of Health Bethesda, MD Email - smh@nih.gov Luigi Notarangelo, MD Children's Hospital Boston Boston, MA Email - luigi.notarangelo@childrens.harvard.edu Jennifer M. Puck, MD University of California, San Francisco San Francisco, CA Email - puckj@peds.ucsf.edu E. Richard Stiehm, MD UCLA School of Medicine Los Angeles, CA Email - estiehm@mednet.ucla.edu Kathleen Sullivan, MD, Ph.D.   Children's Hospital of Philadelphia Philadelphia, PA Email - sullivak@mail.med.upenn.edu Thomas Fleisher, MD -  Alternate   National Institutes of Health  Bethesda, MD  Email - tfleishe@nih.gov   Ramsay Fuleihan, MD     -   Alternate Children's Memorial Hospital Chicago, IL Email - rfuleihan@childrensmemorial.org  R. Michael Blaese, MD -  Alternate   Immune Deficiency Foundation  Towson, MD  Email - mblaese@primaryimmune.org

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Immune Deficiency Foundation (IDF) .

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